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Acceptance & Commitment Therapy (ACT): A Simple Guide for Parents and Caregivers of Neurodivergent Teens

6/1/2026

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Helping Teens Handle Big Feelings Without “Fixing” Who They Are
Parenting a teen with autism, ADHD, anxiety, intellectual disabilities, or other neurodiverse needs can sometimes feel overwhelming. Many caregivers spend years trying to help their child “stop” difficult emotions, behaviors, worries, or meltdowns.
But what if the goal wasn’t to get rid of hard feelings?
What if the goal was helping your teen learn how to live a meaningful life with those feelings?
That is the heart of Acceptance and Commitment Therapy (ACT).
What Is ACT?ACT (pronounced like the word “act”) is a therapy approach that helps people:
  • Notice their thoughts and feelings
  • Accept difficult emotions instead of fighting them
  • Focus on what truly matters to them
  • Take small steps toward a meaningful life
ACT does not try to “fix” neurodiversity.
Instead, ACT helps teens build flexibility, coping skills, and confidence while honoring who they are.
A Simple Way to Understand ACTImagine your teen is carrying a backpack.
Inside the backpack are:
🎒 Anxiety
🎒 Sensory overwhelm
🎒 Fear of failure
🎒 Embarrassment
🎒 Frustration
🎒 Negative thoughts
Many people spend all their energy trying to throw the backpack away.
ACT teaches:
“You may still have the backpack sometimes… but you can still keep moving toward the life you want.”
The 3 Main Ideas of ACT
1. Accept Feelings Instead of Fighting ThemThis does not mean liking difficult feelings.
It means learning:
  • “It’s okay to feel nervous.”
  • “I can survive this feeling.”
  • “Feelings come and go.”
😡 → 🚫 “STOP FEELING THIS!”
vs.
😡 → 👀 “I notice I’m feeling upset right now.”
When teens constantly fight emotions, the emotions often get bigger. When they learn to notice feelings calmly, those feelings often become easier to manage.
2. Thoughts Are Just ThoughtsNeurodivergent teens may have thoughts like:
  • “Nobody likes me.”
  • “I’m bad at everything.”
  • “I can’t do this.”
  • “Something terrible will happen.”
ACT teaches teens to notice thoughts without automatically believing them.
🧠 Thought: “I’ll fail.”
⬇
👀 “I notice my brain is telling me I’ll fail.”
This creates space between the teen and the thought.
3. Move Toward What MattersACT focuses heavily on values.
Ask:
  • What matters to your teen?
  • Friendship?
  • Creativity?
  • Faith?
  • Helping others?
  • Animals?
  • Gaming communities?
  • Learning?
Even small actions toward meaningful goals can build confidence.

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National Alliance on Mental Illness

5/29/2026

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The National Alliance on Mental Illness, also known as NAMI is a wonderful resource for those who experience a mental illness or are affected a mental illness.  NAMI is a nationwide organization that provides support and education to those in need.  Mental health diagnoses can vary from ADHD to schizophenia and anything in between.   Wisconsin alone has 25 different chapters throughout the state.  The majority of NAMI's resources are free.  To name a few of the resources available --
-Support groups (virtual and in person) for families affected by mental illness
-Support groups (virtual and in person) for those affected by mental illness
-NAMI helpline, providing immediate support from 10am-10pm
-Information on mental health conditions
-Guidance on a variety of situations (e.g., finding a missing loved one, calling 911, being prepared for crisis, how to support recovery, etc.)
Reach out to your local NAMI organization today!

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Child Profile

4/28/2026

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You are the expert on your child. You know them at their worst, their best, and all the in betweens.

When your child meets someone new that will be caring for them, it can feel like a daunting task to try to convey all of this information in a way that will be heard and taken to heart. Likely, you have shared this information over and over again, which can be exhausting and feel really redundant and impersonal. 

Developing and sharing an informational profile with new team members can help you give them a snapshot of who your child is, how they best communicate, their likes and dislikes, their strengths, skills they are working on, what to try if they seem upset etc. It can also give you a space to share little tidbits of information that could help new providers take that little extra step to help your child feel more comfortable and successful. Sharing a profile can be a great way to help you connect with new providers in a personalized way, which can set the tone for individualized care and attention. 

The great thing about developing a profile is that you can make edits to it as your child grows and develops. No need to reinvent the wheel and your child may eventually be able to help you make edits with the information that they feel is important to share. Self-advocacy for the win!

There are many online resources drafting an informational profile. Try searching “Meet My Child Summary” to get started!

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Sensory Overload Explained (From a Child’s Perspective)

4/6/2026

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Imagine this.
You walk into a room where the lights are too bright.

There’s a buzzing sound you can’t turn off.
Someone is talking to you, but their voice feels loud—almost painful.
Your clothes itch.
Something smells wrong.
And no matter what you do… you can’t escape it.
Now imagine someone asking you to stay calm, listen, and behave appropriately.
This is what sensory overload can feel like for a child.

“It’s Too Much, But I Don’t Know How to Tell You”
From a child’s perspective, sensory overload isn’t just discomfort—it’s overwhelm in their entire nervous system.
They may not say:
  • “The fluorescent lights are overstimulating me.”
  • “I’m experiencing auditory overload.”
Instead, it might look like:
  • Covering ears
  • Yelling or crying
  • Running away
  • Refusing to participate
  • Shutting down completely
What looks like “behavior” is often a child saying:
“I can’t handle this right now.”

What It Feels Like Inside My Body
If a child could explain it, it might sound like this:
“Everything feels loud. Even things that shouldn’t be loud.”
“My body feels tight and buzzy.”
“I can’t think.”
“I want it to stop, but I don’t know how.”
“When people keep talking to me, it makes it worse.”
In overload, the brain shifts into survival mode:
  • Fight (yelling, hitting, pushing)
  • Flight (running away, escaping)
  • Freeze (shutting down, going silent)
This is not a choice.
It’s a nervous system response.

Why “Just Calm Down” Doesn’t Work
When a child is overloaded, their thinking brain goes offline.
That means they can’t:
  • Reason logically
  • Follow multi-step directions
  • Explain what’s wrong
  • “Use their coping skills” on demand
So when we say:
  • “Use your words”
  • “Make a good choice”
  • “Calm down”
…it often increases frustration—because they physically can’t access those skills in that moment.

What Actually Helps
From a child’s perspective, support might feel like:
✔ Reducing the input
  • Dim the lights
  • Lower noise
  • Move to a quieter space
✔ Saying less
  • Fewer words = less demand on their brain
  • Calm, simple phrases work best
Try:
  • “You’re safe.”
  • “I’m here.”
  • “Let’s go somewhere quiet.”
✔ Giving space (but staying nearby)
Some kids need distance to regulate—but not abandonment.
✔ Co-regulation first, problem-solving later
Connection helps the nervous system settle.

What I Wish You Knew

If a child could leave you with one message, it might be this:
“I’m not trying to be difficult.
I’m having a hard time.
When my world feels too big and too loud, I need you to help make it smaller and calmer.”

A Gentle Reframe for Adults
Instead of asking:
“Why are they acting like this?”
Try asking:
“What might be overwhelming them right now?”
That one shift changes everything.

Final Thought
Sensory overload isn’t a behavior problem—it’s a nervous system in distress.
And when we respond with understanding instead of correction,
we don’t just stop the moment…
We build trust, safety, and long-term regulation.
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Autism Society Updates

3/23/2026

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Autism societies in Wisconsin have some exciting updates!  
Instead of affiliate Autism Societies throughout the state, varying by region, there are now two larger regional autism societies --

Autism United of Wisconsin: Supports Milwaukee and their surrounding counties (Waukesha, Racine, Kenosha, Ozaukee, and Washington)
Autism Society of Wisconsin: Supports the remainder of the state (see post below for specific chapters that merged)

Many of the regional chapters still maintain their Facebook presence, featuring local events. If you are an Autism parent or have a child with any cognitive disability, please subscribe!  They provide amazing resources, connect like-minded families to feel supported, and hold many sensory/disability friendly events throughout the year!!
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Children’s Community Options Program

3/9/2026

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Wisconsin offers a valuable program that assists families with a child with a disability – Children’s Community Options Program!  Also known as CCOP, this program helps families and youth become more independent by paying (typically reimbursing families) for many supports and services that families can’t get through another source (e.g., private insurance, CLTS, or Medicaid).  CCOP may be able to pay for ongoing support or a one time need (note, if the support can be covered by another funding source, it cannot be accessed using CCOP funds).  CCOP funds must be used to purchase goods or services that meet or assist a need or outcome on the child’s Individual Service Plan.  Common examples of covered goods and services include: 
  • Home modifications
  • Adaptive Aids
  • Special Recreation for the child
  • Respite care
If you are interested in applying for CCOP, visit DHS’s website OR ask your CLTS Support and Service Coordinator if CCOP is an option for your child!  Note, CCOP funds are funded annually and do run out, so it’s imperative to apply early to ensure the best outcome!
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Project LifeSaver

2/23/2026

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Within the world of disability, wandering is a tremendous concern!  Unfortunately, wandering is a dangerous reality that is constantly on the mind of many families with a loved one with a cognitive disability, such as Autism, Down Syndrome, or Alzheimer's Disease.  

Project Lifesaver is a nationwide program that assists public safety officials with necessary tools and training to quickly locate individuals with a cognitive disorder who may have wandered from the safety of their caregivers.  The Project Lifesaver program is run at the municipal level, typically by county law enforcement agencies.  

Project Lifesaver provides training to officials that includes training on the use of location equipment, and community policing courses that provide a basic understanding of the cognitive conditions that may lead to a lack of safety awareness and how to best engage with those individuals with a cognitive condition.  Project Lifesaver also provides the individual with a disability with a wearable (ankle or wrist) tracking device that law enforcement can use to quickly track the wearer.  The tracking device is typically low cost or no cost to county residents. 

To learn more about Project Lifesaver, visit their website!  Check to see if Project Lifesaver is available in your county!
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Introduction to DVR (Division of vocational rehabilitation)

10/17/2025

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Siblings with Special needs

9/22/2025

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Being a parent is a hard job!  Being a parent with a special needs child is a hard job! Many days you find there is only so much time in the day and your focus has to be on the fires!  What often can fall by the sidelines, to nobody’s fault(!) is the sibling of a special needs child.  Siblings of a special needs child can often take on a larger caregiver role in the household, out of pure necessity, or feel a need to be ‘better behaved’ to reduce the demand on their parents.  

There is a lot of information out there on things a parent can do to give all their children the attention they need.  A few examples include – 

  1. Designating time to spend with each child 1:1.  This allows a parent to give individual attention to all their children, letting them know that they’re there for them and they’re important!

  2. Give siblings an opportunity to connect with other like minded children. 
  3. Acknowledging a sibling’s emotions.  Sibling’s may be reluctant to share their complicated or negative emotions with a parent, in an effort not to increase demands, but it’s important to let a sibling know that they can share any emotion, positive or negative!

There are many additional strategies that parents can utilize when supporting all of their children.  Within the state (of Wisconsin), there are various social opportunities for siblings called sibshops.  A sibshop is an event that allows siblings of children with special needs to connect with each other.  This allows them to connect with other children who get it!  A few locations/events that offer sibshops are as follows: 

  • Circles of Life is Wisconsin

  • Marshfield Children's Sibshop 

  • Virtual Sibling and Family Support Program

  • Good Friend Inc: Sibshop

  • WisconSibs

If your child has the CLTS Waiver, we recommend connecting with your Support and Service Coordinator about any sibshops CLTS can cover the cost of, as well as utilizing possible respite resources to allow you to have time to connect with your children in a 1:1 fashion!

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Coping Strategies

8/26/2025

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Empty tank. Short fuse. Full plate. Bucket overflowing...There are endless ways to describe the feeling of being overwhelmed and stressed!

Adults, kids, teens, and in between, we all handle stress differently. When we feel calm and safe, it’s easier to pause, think things through, and manage challenges. But how do we learn to do that? Sometimes it’s because someone taught us, maybe they talked us through a difficult moment. Other times it’s because we watched how others cope. Those around us can be very powerful models. We may have even seen a t.v. show that provided coaching and guidance through characters and catchy songs (Think magic neighborhood with talking puppets...).

For many people though, coping strategies don’t come naturally. They may be “taught” skills like deep breathing or going to a calm space, but in the moment of stress, unexpected changes, or an overwhelming environment, those strategies can be very difficult to access and use, especially if there hasn’t been enough practice to make them feel automatic.

That’s where we can step in to help. Practicing or role-playing coping skills during calm moments can help them become more natural and comfortable. Just like we run safety drills, we can do “practice drills” for calming strategies. Turning practice into a game and offering encouragement or small rewards for trying out strategies can strengthen these skills even more.
Regular check-ins throughout the day can also make a big difference (Think, “Hey, how are you doing: Thumbs up, down, to the side?”). By noticing early signs of stress or overwhelm, we can encourage our family to use coping tools before the situation escalates, catching a spark before it becomes a fire.

Practicing our own strategies when we are calm and comfortable can also help us prepare for those inevitable curve balls our families throw us. In fact, why not take a quick moment now to check in with yourself and practice a coping strategy. Don’t forget a little reward after!
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