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Who is Ready for Routine?

7/25/2025

It’s that time of year again–the kids (and adults!) go back to school! For some of us, this is a blessing but for others, it’s a harsh reality of facing advocacy work, navigating meetings when we feel surrounded by professionals and the unknown of how our child will engage in learning. Many of our children cannot tell us how they feel about going back to school. Many of our children cannot tell us how they like their new classroom or teacher or friends. They just know it’s different and change is hard for all of us.
We thought we would help get ready for school reality with some preparation ideas and a checklist to set the occasion for back to school success!

1. Review your child’s IEP or 504 Plan

Request an IEP meeting if major changes occurred over summer or if you child will be transitioning to a new school.
Provide the school with updated medical/therapy documents.

2. Organize School Supplies

Use color-coded folders (e.g., red for math, green for science, etc) or visual labels.
Include sensory tools in the school supplies (fidgets, noise-canceling headphones, etc.).
Pack an "All About Me" page or one-pager for new teachers/aides. Some families make a quick 'All About Me' video to send to the teacher!

3. Establish Routines Early

Begin morning, bedtime, and homework routines 1–2 weeks before school starts.
Use visual schedules to show when school will start and use timers throughout the day for predictability and preparation.
Create a “first day” dry run (e.g., wake-up, dress, drive to school, get out of the vehicle).

4. Prepare for Sensory Needs

Visit the school during quiet hours to see your child’s classroom. “Back to school night” can be a very difficult time to see a classroom or meet a teacher. Consider an alternative time.
Let the teacher know about sensory triggers and supports that work.

5. Communicate with the School

Email the teacher or case manager before school starts with a summer update! Send the 'All About Me' profile document or video.
Share key strategies: behavior plans, communication systems (e.g., AAC, PECs), or preferred motivators.
Request a tour or meet-the-teacher opportunity if not offered. As previously stated, back to school nights are less than ideal to meet the classroom or teacher.

6. Social Stories & Visual Supports

Create a back-to-school social story explaining what to expect.
Include pictures of teachers (maybe snap a picture during your quiet visit!), bus, classroom, and schedule.

7. Transportation Planning

Confirm bus arrangements and introduce your child to the driver if possible.
Label items clearly (backpack, communication device, lunchbox).
Prepare a “bus card” and a “bus bag” with emergency contacts and calming strategies.

8. Set Up Communication Tools

When you meet the teacher, try to agree on how daily updates will be shared (notebook, app, email).
Provide the teacher with your preferred contact method.
Ask for regular check-ins the first few weeks.
Take the teacher an “advance thank you gift” for the care and compassion you want given to your child.

By prepping now, a little bit at a time, you, your child and your child’s teacher will be set up for success! Let’s all work together to make it a great year!

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Caregiver isolation

7/18/2025

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Putting out fires is a regular occurrence for parents and caregivers of those with disabilities! There is always something to deal with and it seems like new things are always coming up! With everything that the family is dealing with, isolation can be common. Feeling like you have nobody to talk to who understands or who can give you sound advice is a frequent feeling!

With the boom of technology and social media, there are many options out there that can help you not to feel so alone, without even leaving your home!

Parent support groups were long the only option, but with the COVID-19 pandemic, virtual became an option and has withstood to be frequently used.
Facebook has groups for just anything, including parents and caregivers of special needs. Group are as general as 'caregivers' to specific 'Autism Parents Support Group.' The majority of groups are private, in an effort to moderate and avoid advertising. When searching for a group that fits you, we recommend groups that are a bit larger (e.g, 5k or more members) and there are daily posts.
Podcasts - While this doesn't allow you to vent, it does allow you to listen to other parents who may have been or are going through the same struggles! As with Facebook, there are an infinite number of podcasts in a variety of topics, such as 'The Special Needs Podcast' or 'The Autism Dad.'
TikTok and other social media platforms. Many special needs parents have dove into social media and posting much of their lives and what they deal with on a day to day basis. While posting may not be your thing, even just viewing those users can allow some comfort in that your not alone!

Everything is available with a simple search! Google your needs and there is likely something out there that fits you and most of the time, they're free! Sometimes it might take a little digging, but that might be worthwhile effort to allow you to vent a little to someone whose been there and gets it!

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Who is Ready for Routine?

Caregiver isolation

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